Minding the mind

19 Jul 2019
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I was inspired to write this blog after reading a piece by a fellow moodscoper on her experiences with mental health services.

Having been referred by my GP to see a pyschologist at my local hospital, I truly felt that maybe I was going to get some help other than the usual "Here's some tablets, come back and see me in a month" line that no doubt we have all heard all to often. (Not that medications don't work because they do help.)

After only half an hour of questions, many of which they already had the answers to, I was told that I was currently too sick (!) for the pyschologist to take my case and was referred to a local eating disorder clinic. (I don't have an eating disorder I have severe anxiety which leads me to be violently sick, this is due to past traumas that occurred at mealtimes).

As I expected the eating disorder clinic wasn't able to help me as they were concerned that the work they would do could make my other issues worse and they suggested I go back to the pyschologist.

Back to my GP I went. His advice then was for me to self refer to an organisation called Insight which I did, only to be told yet again that I really needed to see a psychologist.

It was then in desperation I contacted my local Mind group. I had a meeting with one of their wonderful staff and even though they agreed that I needed to be seen by a psychologist, they have provided me with support, a friendly face, and a shoulder to cry on when it's been needed.

I can honestly say that without their support I don't think I would have come through the last few years unscathed and functioning, even if it is with a malfunction.

Mandie

A Moodscope member.

A Moodscope member.

Thoughts on the above? Please feel free to post a comment below.

Moodscope members seek to support each other by sharing their experiences through this blog. Posts and comments on the blog are the personal views of Moodscope members, they are for informational purposes only and do not constitute medical advice.

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Comments

Orangeblossom

July 20, 2019, 4:37 a.m.

Thanks for your blog Maddie. I’m very pleased that your local Mind group has been very supportive & helpful. I have found their information on various Mental Health disorders extremely helpful & encouraging.

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Ruth

July 20, 2019, 5 a.m.

This sounds like "the magic roundabout" as we call it. I have asked my GP to be referred to the mental health services and he won't. He thinks I'm not bad enough! I researched it and I am hoping that my social worker can refer me when she comes to do a care review next month. All I wanted was to try a different medication as the current ones I have been on for years and they are not working. He just upped the dose again and said come back in 3 months. "The magic roundabout" again!

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Mandie

July 20, 2019, 6:48 a.m.

It is Ruth and when all you want is help and you feel like noone is listening you feel worse

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Katie

July 20, 2019, 6:58 a.m.

Oh Mandie, poor you. You were let down very badly. I'm so glad Mind is helping. Xx

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Katie

July 20, 2019, 6:58 a.m.

Oh Mandie, poor you. You were let down very badly. I'm so glad Mind is helping. Xx

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Bearofliddlebrain

July 20, 2019, 6:58 a.m.

Hi Mandie, How encouraging of you to show others to keep trying! It seems like many Moodscopers have been in the same situation and have been bounced around from pillar to post with different health issues. I had a bad experience with one psychologist, but I think that was because she hadn’t long been trained and didn’t know how to listen! She yawned a lot! Feel like I was boring her. However, my GP was great and for the most part I’m on an even keel...having said that, this week is not a great one due to that old Latin phrase - lackus sleepicus! For me, no sleep/bad sleep = painful joints and low mood. I’m sorry you have had such a bad experience with different medical staff, but thank goodness for Mind. I have never really looked at their website to see what they offer, but I will now. Thank you for a great blog, Mandie. Bear hugs x x

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The Gardener

July 20, 2019, 7:43 a.m.

Bear, love your latin phrase - at grammar school we felt we were so clever, trying to turn Latin into rude words about our teacher. Our younger teacher, after the war, had a huge bust, we had great fun making up rhymes.

The Gardener

July 20, 2019, 7:45 a.m.

Bear, I also thought your 'couch to 5 k (??) was helping the physical pain. I reckon no matter how stable you are, lack of sleep will knock you off your perch. xx

Mandie

July 20, 2019, 7:07 a.m.

Thank you bear , do have a look at the website find your local group and see what is available in your area they offer a lot of different support here in Nottinghamshire where I am from one to one sessions with someone who you can just unburden yourself to without fear of being judged to peer to peer group meetings which I find really helpful just to know that I'm not alone feeling like I do is a great help X

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Jul

July 20, 2019, 7:53 a.m.

Hi Mandie. It's worrying that many mental health professionals make judgments on ones mental health issues based on what they want to think, their agenda rather than what the patient is telling them. Something is going wrong with the system. I am so happy to hear Mind is being helpful and at last you have a caring listener. Jul xx

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Mandie

July 20, 2019, 4:13 p.m.

Very true jul xx

Oli

July 20, 2019, 8:56 a.m.

Mandie, your description has got me thinking in a general way (as in it's not informed by specific experiences in case anyone knows me, lol). I suspect that clinical psychologists become a bit specialised as they go on. I'm wondering if what you wrote about your problem indicated that a psychologist with a particular skill set might be the best fit for you? I obviously don't have the slightest idea if that's the case but I know in my corner of healthcare we really do see this effect. And, for what it's worth I've just remembered that in the past I've discussed with doctors if we could find a particular type of psychologist for a particular person. Thanks for the blog and glad that you found some help from Mind.

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Mandie

July 20, 2019, 9:28 a.m.

I'm sure that a specialist psychologist would help but getting access to one Is a battle and as I'm lead to believe there I little. Known about treatment for c-ptsd which is the condition I have been diagnosed with. There's lots about PTSD but little about c-ptsd x

Oli

July 20, 2019, 10:04 a.m.

Mandie, I was listening to a couple of podcasts on the subject of c-ptsd last week while I was in Wales. This very issue came up: complex trauma is a speciality. Would you be interested? They are kind of for therapists, and the stance is radical behaviourism (which is why I was listening to them -- because that stance informs my approach -- and if you're not familiar with that it's a very science-based approach but it is not common in therapy circles (yet!)). So there is a bit of jargon in there but I wouldn't be surprised if you got something from it. Reply here if you're interested and I'll sort something out.

Mandie

July 20, 2019, 10:16 a.m.

I would be very interested Oli thank you x

Oli

July 20, 2019, 10:31 a.m.

No problem. Initial thought is that if you're happy to let Caroline know (or Caroline, if you see this), then I'm happy for her to pass on my email if she still has it. Alternatively, if it's not a problem, I can post an anonymised link to a zip file containing the two mp3s. It would only be a temporary link.

Oli

July 20, 2019, 10:42 a.m.

Hey, we're okay. These used to be behind a paywall but they're freely available now. Here are the direct links (shortened) to the download pages. Any problem then try plan B with the email etc. Obviously these will not direct link in this reply so you're going to have to be good with the copy / paste skillz! x The asterisks *** are not part of the addresses but what I've used to separate the addresses. I'm sure you can work it out!*** http://tiny.cc/lypz9y*** http://tiny.cc/gzpz9y

Mandie

July 20, 2019, 10:43 a.m.

Maybe post the link or email Caroline and ask her to pass it along to me or if Caroline is able I'm happy for her to pass my email address to you so you can send it direct not sure if that would be allowed tho with the new data protection laws X

Mandie

July 20, 2019, 10:55 a.m.

Found it thanks Oli will listen tonight got work soon so time to get ready . X

Elli

July 20, 2019, 9:05 a.m.

Hi Mandie, I'm sorry for the issues you've experienced in getting help. I understand the struggle, I'm in a similar situation with my GP & CMHT. I'll give my local Mind a call and see what support they might be able to offer. Thanks again, I wouldn't have thought of contacting Mind and looking for support groups in my area without your blog! Elli xx

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Mandie

July 20, 2019, 9:24 a.m.

It's worth a look Ellis I to hadn't thought of going to them for help and only out of desperation that I contacted them good luck I hope they can help x

The Gardener

July 20, 2019, 10:58 a.m.

Getting help is an absolute maze - where does it start? Uninterested GP? Their health trust which does not consider mental illness an important part of their budget. Or the county? One of my sons had superb treatment in Kent. My problem is not really of the mind, but coping with stress. I am already beginning to get 'wound up' with anxiety about these weddings, still a month to the first. Cont

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Mandie

July 20, 2019, 11:01 a.m.

Stress is a major trigger for me to gardener good luck with the wedding plans hope all goes well for the big days x

The Gardener

July 20, 2019, 11:02 a.m.

If I don't control a build up of stress, it leads to tachycardia, which if that gets out of hand would mean hospitalisation, which would stop me travelling. I have diazepan when I need it, dire warnings from my GP here. If as, this morning, I start anxiety, I take a 1/4, been OK all day now. Helped by lots of interesting people. Then I go for self-esteem, walk better, bother with 'grooming' stop wearing the same old clothes. Then I DO dwell on the past, because looking through everything I know I have done nothing wrong, but that is more difficult. Cont

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The Gardener

July 20, 2019, 11:06 a.m.

over my life I've coped with road accidents, horrific illnesses with the children, moving houses, serious money problems, sticky situations abroad. I have NEVER succeeded with rows, shouting, drunkenness, family feuds, and the current alienation. I tell myself there will be loads of people I like (and I think like me) and new 'in-laws', all civilised people. But the trepidation about the 'trouble makers' won't go away. Working hard at it though. Oh, thanks Mandie above. xx

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Mandie

July 20, 2019, 11:24 a.m.

I try to avoid crawling under the bed as a way of dealing with stress nowadays but as a teenager I was often found under my bed with headphones in a blanket and my dog, now I just disappear into the countryside with my dog instead

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The Gardener

July 20, 2019, 5:28 p.m.

Hello Mandie, love it. Could not cure my stress like that, bit of a job to crawl under my bed, would suffocate in the dust. Do not have a dog. Could take radio. Don't think cure would be efficacious! Used to shut out my Ma's nagging by putting fingers in ears, made her mad! x

Mandie

July 20, 2019, 5:52 p.m.

Hi gardener I'd be lost without my dog nearly broke me last year when I was told that he needed a pacemaker and it would cost nearly £4000. Thanks to a go fund me page and my other half we raised the money and I have my happy boy back and thanks to mind I got through another heart ache. May sound daft but I find colouring helps me settle if I'm feeling stressed or anxious

Molly

July 20, 2019, 6:48 p.m.

£4,000 !!!! I would have done everything I could to raise the money too. How lovely that you raised it, there are some good people out there. Thank goodness you still have him. Colouring is very therapeutic isn’t it xx

Bailey

July 20, 2019, 2 p.m.

Two years ago this past July first, Canada Day celebrations were going on all over Canada and I walked into a walk in clinic and told the GP:"I can't deal with life anymore." He barked:"yeah you and the five before you!" I wondered how much differently I would have been treated if I had staggered into an emergency room clutching my chest. Today I am doing much better and have actually forgotten his name. The trick is to keep searching for help when all one needs is help for it all...making no sense at all.

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Geoff

July 20, 2019, 6:12 p.m.

Hi Mandie, I, too, found my local MIND group really helpful. I attended two x 10 week "Wellbeing" courses and nearly 4 years later, a few of us still meet, weekly, as an unofficial support group. X

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Mandie

July 20, 2019, 6:17 p.m.

The support group I attend is a great help to me to I tend to isolate myself when I have a malfunction it's good having a group of friends who understand and help me through these times I wouldn't have met any of them if it hadn't been for mind x

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Molly

July 20, 2019, 6:17 p.m.

Hi Mandie Thanks for your blog. Oh it’s all too familiar isn’t it. Similar happened to me. I’ve said it all before on here I think, so I won’t go into it again. The system is so very bad. For a number of reasons, I’m not sure I’ve ever had a good experience. As the saying goes, I could write a book about it. I have never had contact with MIND and didn’t realise that they provided one to one support. So that’s worth knowing and I’m SO pleased that they have helped you. I tend to ring the Samaritans, and I can’t praise them enough. For people that don’t know, you don’t need to feel suicidal to ring them. You can even just call for a chat. 24/7. Or you can email them if you don’t feel like talking and they always reply. Wishing you all the best with everything Mandie. Love Molly xx

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Mandie

July 20, 2019, 6:37 p.m.

And all my best to you to Molly .

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Molly

July 20, 2019, 6:55 p.m.

Thank you Mandie xx

Valerie

July 20, 2019, 7:32 p.m.

Mandie, At the dog rescue where we work,Spock and I have been project managing some building work.He recently worked out that unpaid volunteers (including some corporate teams) have contributed around £3,500 in man hours to complete the job.This set me wondering,how much money do charities like Mind (and Moodscope of course!) save the NHS in keeping people afloat,not in hospital or in therapy? I only know what little I have read about PTSD in war veterans,but I gather from a few posts on here that very severe suffering can have the same effect on others. I dread to think what you must have endured for this to have happened to you,and pray that you will find peace of mind.xx

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Mandie

July 20, 2019, 8:07 p.m.

Thank you Valerie, thankfully I have large mental blocks that obscure much of my past. In many ways it has given me strength but in other ways it has left me damaged. When I'm functioning I do ok but when the malfunction takes over my weaknesses are exposed. In a way I have some peace of mind knowing that my past has taught me some good lessons on how not to treat people " do unto others as you would have done unto you" Xx

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