Do we ask too much of the medical profession?

13 Sep 2018
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Over the years on the Moodscope blog we have read not only of the prime motivator, depression, but bi-polar, PTSD, Autism, Aspergers, ME etc. The picture is not a joke.

These baboons were in Singapore Zoo, thus immune to predators. In the wilds they would have been a bonded pack – dominant male, the old sent off to die in the forest or be killed, mothers would have the babies attached to them; at signs of danger they would have headed for the high branches. They groomed each other, reducing illness. They ate well. Being extremely canny, when natural food ran short they came into town – I have seen them virtually hi-jack a banana lorry, denude a mobile canteen from the back, and attack room service trays in hotels. Being our forebears, did their genes carry the foundation of our mental sufferings today?

I have a neighbour, a young man of 24, who exhibits all the symptoms of Aspergers. I know his history, without spying, our houses had been divided, with thin dividing walls, and from our bedrooms we could see into each other's gardens. His parents had both divorced previous spouses, and married each other. She had custody of her 4 year-old son, he had grown up children. They then had a son and a daughter between them. The tension between stepfather and stepson was appalling, hysterics from mother and son, shouting from stepfather.

After 7 years, by which time the eldest boy was having psychiatric treatment, the decision was taken to send him back to his natural father. The younger brother was bereft, only word, they were buddies. Sixteen years later he walks with his head looking at the ground, talks to nobody, has never had a friend, never goes into the garden, does not listen to music (his bedroom is next to ours), has failed two lots of university courses, now out of work.

I've been lucky with truthful doctors. Treatment for manic depression was hopeless, would have wrecked the remaining kidney. Lithium drove me frantic. Doctor said WE would have to cope, the WE was vital. I could use Vallium, and Mogadon. We got a new doctor – first visit, what did I want? Repeat prescription for Vallium, please. Why? Well, I always have Vallium. Well, you are not having any more, you are totally dependent.

I have two crumbled vertebrae; orthopaedic surgeon said no surgery possible. He made me do all sorts of exercises, said I was very supple, and gave me 20 sessions with a physio. After 15 Jean-Luc said he could do no more, I was on my own, every sort of activity possible, and build up the muscles. So, for me, doors are shut. But now, if a Doctor refused the modern Vallium, would I have been able to get it on the Web? I know so many of you are really suffering, but if we are looking at a dearth of doctors and money, are we going to start having to take risks? Like self-help?

The Gardener

A Moodscope member.

A Moodscope member.

Thoughts on the above? Please feel free to post a comment below.

Moodscope members seek to support each other by sharing their experiences through this blog. Posts and comments on the blog are the personal views of Moodscope members, they are for informational purposes only and do not constitute medical advice.

Email us at support@moodscope.com to submit your own blog post!

Comments

Molly

Sept. 14, 2018, 3:02 a.m.

Yes, I do self help, by getting drunk every day - I broke both ankles and was discharged, they still hurt and I still cannot walk very far. No after care. Mental health, got discharged. No after care. Husband three strokes and no use of legs, no after care. So he gets drunk too and that is how we cope. Cheers everyone, here is to another day xx

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Maggie May

Sept. 14, 2018, 5:43 a.m.

There are healthy self help tactics and much less so . I know many people, including my son, who drink to dull the pain. The mental health services are more and more stretched, limiting help to recommended web sites, limited one to one sessions after long waits and one size fits all group sessions. I found the biggest problem with bi polar and cyclothemia is that by the time you are seen you could be level and no longer qualifying for treatment because your GAD7 test result looks like you are cured! This site is always here and there are other resources of help for Stroke survivors and carers and people with alcohol problems . Knowing that alcohol is your crutch and that it is not the best way is an important step. Hope you and your partner , and my son , find a way forward to enjoy life without drink.

Lex

Sept. 14, 2018, 5:56 a.m.

Hi Molly, I really appreciate your open sharing here. Moodscope itself is part of my aftercare that helps on a daily basis, but I also self-medicate. I don't get drunk, but I partially understand the desire to numb the pain. Here's to another day, hopefully with more support.

Leah

Sept. 14, 2018, 7:38 a.m.

Molly, I find it appealing you and others are treated so badly. is saying self help just a way of saying the health system won’t help. I am not sure what else to say but you deserve a lot better. Xx

Leah

Sept. 14, 2018, 7:39 a.m.

Sorry, predictive text, should read appalling, So sorryxx

Molly

Sept. 14, 2018, 2:55 p.m.

Thanks Jen, Lex and Leah. I do not literally get drunk, it was an exaggeration and a reaction to Gardener's post. It took me a while to realise where Gardener was coming from especially reading further comments. I was drawn to the debate on here today. Jen, sorry about your son, you must feel powerless, and I hope I did not open wounds for you. Lex, thank you for your understanding. Leah, your kind words mean so much xxxx

Orangeblossom

Sept. 14, 2018, 5:42 a.m.

Hi The Gardener, thanks for the blog. I have had phases when I’ve asked a lot from them, but now I focus on self-help in the form of mindfulness meditation. It has helped considerably and presented me with a challenge daily to carry on practising. Accepting change and going with the flow helps as well as supporting friends & colleagues by practising listening skills. Above all being courteous & affirmative which isn’t always easy in the face of billergence. I’m persistent but not a paragon.

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Lex

Sept. 14, 2018, 5:54 a.m.

So well thought through and written, dear Gardener - and so touching. Thank you. Folks, when I can (which is most days), the posts also go out on Twitter @Moodscope and Instagram @DailyMoodscope as well as on our public Facebook page @MyMoodscope so, do feel free to spread each day's helpful blog. Cheers, Lex

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Maggie May

Sept. 14, 2018, 6:12 a.m.

This scared me a little. I don’t use these other sites and think I would now need to be mindful that people I know could not identify me if I wrote a blog. I know anyone can access moodscope but much fewer people do . Also those who do are always supportive in their responses, but I understand other sites much less so. Is this a valid fear Lex or just a lack of understanding on my part?

Sally

Sept. 14, 2018, 6:54 a.m.

Me too, jen.

Jul

Sept. 14, 2018, 7:15 a.m.

Me too. I think the comments I make rather than any blog I might write, could give my identity away and I am very worried now that Moodscope's FB page is now public. I thought it was private. I understand the need to publicise Moodscope but not in such a public, non confidential way. Is there any way you can delete the names of the blog writers and the names under the comments? I know I could write as anonymous but even then I might be identified and anyway I feel the Moodscope community know me and I know the other names which makes Moodscope the comforting meeting place it is. The big worry is that people who are not members of Moodscope now have access to our writings, heart searching and anxieties. Caroline, could you let us know your thoughts on this please? I'm not a member of FB so can't check if the comments etc are anonymous. I am off to check Twitter now. I'm active on Twitter but only on neutral subjects, nothing personal or health related. I would never ever expose anything personal about myself on a public forum. I think one of the things that would worry me is that people who don't have similar mental health issues might discover things about me I don't want them to. Moodscope members relate and don't judge. In any case should we not be asked our permission to have our comments publicly aired? Jul

Leah

Sept. 14, 2018, 8:06 a.m.

if I type in my name and moodscope many of my blogs come up on google. this has always been available as long as I have been on moodscope. Also on FB some of the blogs but not all but there is not a huge following there. I can understand Jul and Jen that this maybe concerning but I suppose as it has been like this for year with blogs anyway, not sure what can be done now.

Jul

Sept. 14, 2018, 8:28 a.m.

Sally, Jen and I have all expressed our concern about this. I am sure there will be others like you Leah who don't mind and possibly are glad your name and blogs etc are out there. I am sure there are many who couldn't care less either way. I guess it's all down to personal choice. But I feel we should be able to make that choice before our comments and blogs get put out there for everyone to see and not by default i.e learning today that Moodscopes FB page is now public and that we are on Instagram and Twitter too. Thanks Leah for your thoughts. Julxx

Leah

Sept. 14, 2018, 9:30 a.m.

Thanks jul, it is not that I do t mind and I certainly am not glad my name is on my blogs as it is an 7nusal so am easily identified, I just was saying it has been like this for a while. I agree with you moodscope should telll everyone so everyone can make a choice. If I had known at the beginning I may have used as pseudonyms. I never knew 7ntol today about Twitter, it the blogs would be far longer than the character limit so what part is used,? yes jul I agree we need to be fully informed before we can make a proper choice. 5hanks again Jul for your input. Xx

Caroline Ashcroft Moodscope

Sept. 14, 2018, 9:38 a.m.

Hi all, Presently the blogs and comments are not anonymous but no surnames or personal information is shared anywhere. The Facebook and Instagram pages, give a link to this blog so they are just another way of us publicising Moodscope. Having the blogs public firstly encourage people to join Moodscope and secondly, because we are always adding content to our site through publishing the blogs, the search engines pick this up which ensure we appear in searches when people are looking for help. If we keep all the blogs and comments password protected they would not be picked up and the site may not appear in the search engines. I'll have to ask the programmers if it's possible to make the blogs and comments totally anonymous to anyone who isn't a member, but I'm not sure if this would make any difference as most people don't use their real names anyway. Carolinex

Jul

Sept. 14, 2018, 10:13 a.m.

Thanks again Leah. I appreciate your understanding and support. Jul xx

Jul

Sept. 14, 2018, 10:17 a.m.

Thank you Caroline. At least I know now! I can see it from your point of view, wanting to spread the word etc and what better, easier way to do this than FB, Twitter and Instagram. However I wish I had known that the Moodscope page on FB had changed from being private to a public page. But as I said now I am fully informed, I can make changes to the way I interact with the blog etc. It's a personal choice, one which we can each make now we know the score. Jul xx

Caroline Ashcroft Moodscope

Sept. 14, 2018, 11:45 a.m.

Hi Jul, Sorry, it hasn't changed, we have both, a public FB page and a private page. Also, it's not set in stone, it is something we are currently discussing whilst developing the app. I'll let you know the outcome. Carolinex

Caroline Ashcroft Moodscope

Sept. 14, 2018, 11:50 a.m.

Hi Leah, the blogs aren't published on Facebook or Twitter, there's just a link to the blog. Carolinex

Jul

Sept. 14, 2018, 11:51 a.m.

Thank you Caroline. Jul xx

Mary Wednesday

Sept. 14, 2018, 2:06 p.m.

I guess people could link me with Mary Wednesday - especially as I publish my blog (sometimes, when I remember) to my FB page; but then, I am public with my bipolar anyway. Yes - this is a supportive community, but normal rules apply: never post anything anywhere you are not happy to go further. We have an understanding that things shared on this page are confidential, but nowhere do we sign anything to that effect in blood.

Molly

Sept. 14, 2018, 2:48 p.m.

I was amazed when I googled Molly and Moodscope. This has been brought to my attention before, but I forgot about it. I will be very careful now what I write on here.

Sally

Sept. 14, 2018, 6:08 a.m.

Help is needed where help is needed, Gardener. I have lots of examples where self help just would not have worked. Friend who committed suicide last year, through lack of care. Came too late. Medication is there for a reason, and I take it daily, a small retainer dose of 20mg , knowing that without it I would revert to being the quivering jelly in the pit of **** that I was before taking it. I thought long and hard of the options and was in my mid -forties before I “ succumbed”. But very glad I did, because my quality of life has improved exponentially and NOW I can help myself. I take an aspirin if I have a headache, so why not the serotonin which my body lacks? I do appreciate the heavy cost of medical care and overuse of it, but would be willing to pay as we do for dental plan. Health, optimal health, comes first. And sometimes a little support from a scientific discovery that has been meticulously developed with the best of intentions , to treat a mental health problem is a godsend. I have a vision of medical care in the future where a person -centred approach would be used, for prevention, quick intervention, and so on. I can dream...

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Maggie May

Sept. 14, 2018, 6:15 a.m.

Totally agree xx

The Gardener

Sept. 14, 2018, 6:33 a.m.

Sally you are absolutely right - but, as I said below, getting the help may come too late. You say you would be willing to pay, as for teeth, but since the NH was founded ANY suggestion of paying for health is politically volatile and anathema to most of the population.

Mary Wednesday

Sept. 14, 2018, 2:10 p.m.

And - further to that, my medication is expensive; a month's supply is approximately £50. That is not insignificant in any budget, and, given that many people with bipolar disorder are unable to work, out of their price-range. So - thank goodness for the NHS.

Sally

Sept. 14, 2018, 6:13 a.m.

Aspergers boy has me worried. Autism is woefully unaddressed in France , financial benefits maybe, but other than that. ... I think this young man of 24 needs the right sort of help. I used to teach students with ASD ( autistic spectrum disorders ) and these signs you deccribe are deeply worrying. Proper care needed there, obviously. Doesn’t sound to me as if his needs are being addressed!

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The Gardener

Sept. 14, 2018, 6:40 a.m.

Dear Sally, the state of my poor neighbour is totally down to selfish parents. His younger sister went to boarding school at 16, and has never been back. Grandparents and cousins never come near.

Sally

Sept. 14, 2018, 6:58 a.m.

As I said, woefull unadressed in France. People move here because provisionis better. I have had to fight tooth and nail for acceptable provision for our now 33 year old, and know the demoralising effect it can have on the whole family. And there is never a long queue of folk wanting to help or take our son out!! Fear and nimby-ism. No other conclusions . The authorities have little knowledge except for the odd wonderful helpful sympathetic and empathetic one, gold dust!!!

The Gardener

Sept. 14, 2018, 6:19 a.m.

Dear Sally and all, your remarks are so pertinent. This blog is not personal criticism or provocative. I am a demographer and statistician. I have a data base of the BMD of 110,000 people in this canton from 1580, I have gone through all the things which killed people early, and with little medical help. Suddenly, life expectancy has gone up dramatically, fine, but finance and medical personnel has not caught up with the inevitable needs of the elderly, plus, at the same time, galloping mental problems and stress.

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The Gardener

Sept. 14, 2018, 6:24 a.m.

My husband has cost the French state at least 60,000 euros. He has an X-ray Monday - he has virtually refused to walk for 2 years (Alzheimer cause) but it looks as though he might have ulcers, even gangrene (his mother did) so more medical help and more worries for me. The care home has many stroke victims - and I have to agree with all of you above that you can poor love and care into a person and then the end comes, professional help vital - Sally gone through all this.

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Sally

Sept. 14, 2018, 6:59 a.m.

Exactly.

The Gardener

Sept. 14, 2018, 6:29 a.m.

The underlining 'message' is we are (and the media is full of it) at crisis point. The new 'plague' obesity, and the huge increase in mental problems, is causing young people to need diabetes care, hip and knee replacements, and therapy of all sorts. As said above, mental illness will HAVE to become the 'poor relation' because it is time-consuming, expensive and 'open-ended'. I said I was 'lucky' to have truthful doctors, because I KNEW medical help was out of the question.

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Sally

Sept. 14, 2018, 7 a.m.

Medical help is always available but medics are now expected to play bursar as well. They wring their hands in frustration, believe me.

The Gardener

Sept. 14, 2018, 6:43 a.m.

I must say that two of my sons have 'been through the mill' have had excellent medical and family back-up, and have 'pulled themselves up by their boot straps' but not without well thought out medication. But one always fears a 'relapse' and will the help still be there?

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Sally

Sept. 14, 2018, 7:02 a.m.

Every breakdown is a breakthrough. I once heard Beachy Coghlie ( spelling!?) on radio say this and I firmly believe it. You get a little stronger ( or die! Worse case scenario as in my poor J.)

Alex

Sept. 14, 2018, 6:56 a.m.

Hi, Gardener, thank you for the blog. Can relate to you: I had quite a few troubles when choosing a psycologist; it wasn't a fast process and there was one big fail. My first psycologist even made me feel worse. However, I don't blame her. There's no point in it. And there was no salvation for me back then, I had to go through that **** on my own. Doctors are not perfect and we shouldn't rely on them too much. You are alone and you are the only person who can help you in the end.

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Jul

Sept. 14, 2018, 7:03 a.m.

It's an interesting point you make Gardener about the ease of buying medication online which might be refused by our UK GPs. When I accompanied my OH on his work trips abroad, I could go into any pharmacist and buy Valium which cost a few pence. I didn't like doing it because of the stigma attached to it here and also I wondered if the tablets were pure Diazepam but I was assured by those who knew that the production of it was highly regulated in that country. I bought a lot! However knowing I could have as many as I wanted, in itself made me less anxious and I didn't take them with gay abandon. I knew they were there and that itself was a comfort. I have told my GP here that if he didn't prescribe me this medication (every 5 months), I would probably drink alcohol to calm me down or help me sleep. It takes an understanding GP who knows the patient like mine does to be sensible in prescribing. Such a pitiful tale Gardener about your Asperger's neighbour whose brother was so cruelly taken away from him. A good blog Gardener. Jul xx

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Jul

Sept. 14, 2018, 7:21 a.m.

I've just checked on @moodscope (Twitter) and the blog and its comments with name appears on Twitter just as you see it here. Very public! I will wait to hear from Caroline before I decide what to do. May have to stop commenting etc. I know Moodscope is a quasi public forum but its public for members and not the world. Jul x

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Maggie May

Sept. 14, 2018, 9:52 a.m.

I have just returned to this and , like you, am not happy and will cease to respond to Blogs in the same way. Our friendship group I feel has been spoilt by this , and I feel angry that this action was taken without consultation, nor were we even informed. It may be that I am overreacting and will be interested in following the responses to this issue.

Jul

Sept. 14, 2018, 10:12 a.m.

Thank you for this Jen. I was beginning to think I was being paranoid and over reacting. You've said it so well when you say our friendship group has been spoilt by this. Exactly. Maybe we are naïve to think our friendship group on Moodscope is personal and not public, open to anyone and everyone to view, read about and form opinions on us. I've never really thought about it before today so I'm annoyed with myself! Caroline has responded below. I still firmly believe we should have been asked for our permission before our blogs, personal revelations (which could well identify us) were put out there on the public Facebook forum (as well as Twitter, Instagram etc). I too am going to stop responding to the blogs in the same way. I love Moodscope and would miss it. It's helped me so much over the years so I shan't stop reading the blogs and comments. I'm just going to take measures to protect my identity in future. As I said earlier it's our personal choice and now I have more information, I can make a choice. Go well Jen. Jul xx

Caroline Ashcroft Moodscope

Sept. 14, 2018, 11:53 a.m.

Hi Jen, sorry, it's always been this way. As I've said above, it is something we are currently reviewing. Carolinex

Maggie May

Sept. 14, 2018, 1:59 p.m.

I understand your motivation and am no longer angry. My problem is that I have slowly drip fed information about myself and even worse ,my family , to the extent that I could be identified by people close to me. I hadn’t chosen a buddy for moodscope because this may have reduced my honesty whilst benefiting from the site. The genie is going to be difficult to put back and I further worry about hacking and blackmailing potential, but that is probably catastrophising.

Sally

Sept. 21, 2018, 4:57 a.m.

“I hadn’t chosen a buddy for Moodscope because this may have reduced my honesty whilst benefiting from the site” . Yes! that was exactly how I felt , Jen. You’ve made me realise what I struggled to put into words, thanks for that! Sally

The Gardener

Sept. 14, 2018, 7:56 a.m.

Jul, my attitude to Social Media is that it is such an uncontrollable monster that 'che sera sera'. With a grand-child we put our name on 'Google'. Shattered. Where did all that info come from? A lot of us have been published in academic magazines, they are all on. We were company directors, all in the public domain. One of my sons sends me outrageous (and extremely funny) jokes about President Trump - now that scares me!

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Another Mary

Sept. 14, 2018, 8:21 a.m.

Hi Gardener, I think self help is the way forward actually, starting with exercise, diet, sleep. Just those simple things can improve mental and physical health and help you get through difficult episodes quicker. Even gentle walking can help. All these are tools to help you develop resilience and deal with the **** that life throws at you. Why do you consider self-help risky? Nothing is risk free, but looking after yourself is one of the best things you can do, you know yourself best. What about Moodscope? That was started by Jon Cousins as a self-help tool. It is a self-help tool for those of us who use it. I know that by eating certain foods and avoiding others I feel better physically and mentally. I don't always do that the right way round and I pay for it with a dodgy gut, which hugely affects my mood. The doctors can't tell me that, I had to discover that for myself. Help myself. Heal myself, with the doctor as facilitator, not the person with all the answers. Have you found things that you know make you feel better?

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The Gardener

Sept. 14, 2018, 2:56 p.m.

The 'risk' remark was like my doctor and Vallium, we have been inured, even indoctrinated, that ALL ills can now be cured, and blame our medics for something we may have brought on ourselves - and scared of 'going it alone'.

The Gardener

Sept. 14, 2018, 3:14 p.m.

Your question on things making you feel better - walking with a group - 2 hours locally, or 2 weeks with the excellent Ramblers' Association - 4 levels, always in super places - memories now

Jul

Sept. 14, 2018, 8:21 a.m.

Hi Gardener. The internet/social media is a positive force for academic journals and academic writers and businesses. And I do understand your point about what will be will be. But very personal revelations are a different matter. For me anyway. I don't like Facebook and the way it uses its users as products and cash cows. I thought Moodscopes FB page was private. I now find its public. And none of us was asked for permission to have our names albeit mostly not our real names, put up on FB. But maybe that's not a requirement and I now have to make a personal decision on whether I comment on what is now such a public forum with presumably links to other sites I don't know about. Julxx

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The Gardener

Sept. 14, 2018, 8:28 a.m.

Jul, FB terrifies me - but I have been forced to use it - two very important people to me only correspond on it, they have abandoned e-mails. One, was my Indian 'daughter' whom I thought was dead, now I am a proxi-grandmother to a little boy who has been given an English name to 'thank' us. Grand-daughter, last week, did not 'unfriend' me but stopped the endless junk people sent - some people report everything they do! xx

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Jul

Sept. 14, 2018, 8:31 a.m.

Yes! Clearly FB appeals to millions of people and value it highly. I'm so glad to hear it's opened some doors for you and happy to hear your grand daughter is policing it on your behalf! Jul xx

Valerie

Sept. 14, 2018, 8:30 a.m.

You will get a big response to this Gardener.My experience of our NHS is that it really comes into it's own in emergencies.After I had a serious accident,I could not have had better or more up-to -date treatment anywhere in the world. Discharged from hospital late Friday,Sunday am the physio SWAT team phoned,and came round within minutes.I had the direct numbers for them,and the pain relief nurse.Regular "courtesy" calls for the first year. A neighbour has just had an ultrasound,3 weeks after reporting post-menopause bleeding.She was first examined at hospital 2 days after seeing the G.P. Mental illness seems to be a postcode lottery round here.A friend's husband just diagnosed with bipolar has been told to wait 9 months to see a psychiatrist.The drugs he is on are not working to keep him stable.Another woman who had a breakdown is having amazing help and support. In the UK a lot of money is lost through patients who abuse the system-missed appointments,calling ambulances for trivial problems,demanding precriptions for medicines that cost pennies in the shops. I self medicated for years,buying (legal) mood enhancers/sleeping aids from an American supplier working out of Ireland.Things like Tryptophan,Melatonin,DHEA.They kept things O.K.for a few years. If my G.P.ever refuses my Prozac,I will try a private doctor,and if that fails I will look to America,even though it would be expensive. We are all to some degree responsible for our own-wellbeing,and conditions like depression and bi polar in particular require vigilant self-management.Moodscope in my opinion is an amazing source of support and knowledge,as essential to me as my daily capsule. Very sad story about the Aspergers lad. xx

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The Gardener

Sept. 14, 2018, 8:56 a.m.

Valerie, very pertinent about UK medicine. Talking to our GP in UK, started as a student with us. He was also a teaching doctor. He says the UK is marvellous for urgent treatment - but for things which are not life-threatening (in theory) you can wait for months - the sufferer's quality of life and those with them (particularly depression) will be diminished. xx

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Anonymous

Sept. 14, 2018, 9:17 a.m.

I’m more worried that there are details here about a chap who could possibly be identified by the details mentioned here...I’d be mortified if I read such comments about me by an apparently “concerned” neighbour: I have enough social anxiety and self-consciousness thanks very much. Each set of my neighbours, throughout the years, have all made similar assumptions about me and why I have the issues that I have. They don’t know half the story though, and their assumptions have actually increased my problems at times. I’m also a mental health professional, and I would be putting service users at risk if I were to include such details about them in a public arena...I know it comes from a kind-hearted place, but please be aware when writing about others.

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Molly

Sept. 14, 2018, 2:59 p.m.

I agree, people are far too judgemental and should not talk about other people that they do not really know. Especially on a site that appears now is public.

The Gardener

Sept. 14, 2018, 10:05 a.m.

Just been taking my own medicine - coping with potential anxiety - what will X-ray show on Mr G Monday. If, as seems likely, it includes hospitalisation it would disturb my already fragile routine and relative peace. So I had a furious attack on weeds (nettles among them, so stung) I want to plant roses there. Cast an eye on the iris garden, and immediately thought of Another Sally, and hope things are better. We don't want censored Moodscope, hope it is OK.

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Mary Wednesday

Sept. 14, 2018, 3:01 p.m.

With regard to the legitimate concerns regarding anonymity posted above, I have the following comments. The blog has always been public. The supportive community behind it has grown organically. It is possibly appropriate to move the community (not the blog) to another forum. I understand the distrust of Facebook, but the existence of secret groups - which do not show up on searches and to which one has to be invited - enable it to be much more secure than is imagined. It is possible to create an email address which is used just for this purpose thereby meaning that FB has very little information about you. All your settings on your "page" can be private and if you post nothing to your page, then you can use it as a facility to post to a secret group only. An issue with a FB group is that it needs a moderator. This can sometimes be an onerous task. An alternative to a FB secret group is a Whatsapp group, which is a mobile phone group (you need - I understand - a smart phone for this.) A Whatsapp group is totally private, is automatically encrypted: thus secure, and does not require a moderator. A disadvantage is that the conversation is entirely linear and it is not possible to respond to comments directly and thereby keep strands of conversation separate. Moodscope itself and, I would argue, the supportive community behind it, needs to be discoverable. There are many, many people out there who could and would benefit from MS and the support it provides. There are also vulnerable people who can, if anonymity is not provided, latch onto certain members, asking for a level of support which is not appropriate or indeed, possible. I should hate to see any members of this wonderful community retreat because of anonymity issues. Let us all work with Caroline, to find a satisfactory arrangement. And - I am always discoverable if you really want to. In most cases I am happy for Caroline to hand on my details. But - that's me!

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Molly

Sept. 14, 2018, 3:39 p.m.

I have just been on Moodscope on Facebook and I am shocked that all blogs are made public. I wrote one recently but I won't be submitting it as I thought this was a safe and confidential place.

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Sally

Sept. 14, 2018, 5:35 p.m.

Horrified to learn how public my and others’ comments are! Really had imagined there was a confidentiality clause operating and as worried as others about the piecing together my private comments to the Moodscope community. It changes everything, I’m afraid. This is a sad day. I feel my trust has been betrayed in ways I had not thought possible.

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Sally

Sept. 14, 2018, 5:36 p.m.

By the way, I am never ashamed about what I write, but it is written for a Moodscopers eyes only.

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Molly

Sept. 14, 2018, 10:34 p.m.

Same here Sally, I'm not ashamed of what I write but I don't want my family reading it, or the rest of the world for that matter xx

Caroline Ashcroft Moodscope

Sept. 15, 2018, 8:51 a.m.

Hi all, an update: Whilst we are looking at the implications and timings of making the comments and the blogs private, from today we will not be promoting the blogs on any social media sites. Carolinex

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